"Wouldn't your life be easier if you didn't identify as autistic?"

I've heard that question a lot lately. Well, enough to justify thinking & writing about it. It sounds like a simple question, but when you think about it, there's a lot of complicated nuance involved.

Yes, my life would be easier if I didn't identify as autistic. No, my life would not be easier if I didn't identify as autistic.

People have a great deal of prejudice about autism & other developmental disabilities. I've been bullied out of activities and classes because I am autistic; I've been discouraged from even trying others. People and professionals who are 'familiar' with autism but unfamiliar with me assume that I am less capable of many things than I am-usually in a patronizing & insulting way. It is often assumed that I cannot be good at some of my hobbies and simultaneously assumed that I have some sort of magic autistic savant skill. That part of being autistic really sucks-having to prove my humanity & my individuality over and over and over and over again is exhausting.

The thing is, I don't really pass. I shouldn't have to, either, but even if I wanted to, I just don't. There are things about who I am that scream DIFFERENT. People probably don't peg me as autistic right away-they aren't used to thinking of autistic and adult in the same sentence-but they know damn well I am not of their tribe. Abberation is a crime whether there's a name for it or not.

Distancing myself from the term 'autism' doesn't mitigate the problems (or strengths) that got me the label in the first place. I am going to be labeled in some way whether I let my neurodiversity freak flag fly or hide it in the back of my junk drawer. Being oversensitive, undersensitive, unaware, overaware, strange, belligerent, overly predictable, unpredictable-all of these things are unsafe to be, regardless of diagnosis or lack thereof.


The fact of the matter is, I am autistic. If I didn't identify as such, I would be doing myself (and I like to think the autistic community as well) a huge disservice. It's who I am, easy or not. Owning who I am is a big part of getting other people to accept that I and people like me are really real human beings rather than damaged goods. If it's something that is so bad that I cannot acknowledge that it's part of me, why should I expect people to treat me and mine as equal? The short term convenience of possibly almost passing just isn't worth the long term consequences to me and my autistic peers.

Call it what you will-my brain is autistic and my experience is autistic. It isn't the easiest identity or neurology to live with, but it is mine.

I think the answer just came out to "no, it wouldn't be easier. It'd just be hard in different ways".

We Aren't Here to be Your "Resource"

And it's fucking insulting when people say we are.

Autistic adults are not here to explain to NT parents what autism is like. Shocking, right? We are not a 'resource'. We are human beings. We have our own interests and lives and opinions and experiences.

Suggesting or acting as though our only value is in explaining autism to people who know an autistic person is displaying a shocking lack of empathy. All the literature used to say that autistic people used other people as tools. They said this apparently without irony, as that characteristic is way more descriptive of "translate my child" parents then it is of any autistic person I know.

Seriously. How is it even ok to act like 'letting' us tell you what it's like to be us, or what it was like to be us 10 years ago, is something we owe you? We don't owe you anything. It is arrogant and ableist to act like because you tolerate our existence, we owe you all the 'insight' you ask for.

Bonus points, by the way, for parents who want our 'insight' but otherwise want us to shut the hell up. If you want to know what I think about something-and I feel up to telling you-you're going to get exactly what I think about that something. We don't exist to make you feel better about how you think about or treat your autistic kid, either.

You aren't doing us any favors demanding we tell you about our neurology or insisting that we agree that your choices for your child are wonderful-we are doing you a favor by indulging these questions if we choose to do so.

New Project

I have a new project, and if people wanna help, they are awesome and amazing.

Basically, a lot of stuff exists to help NT's cope with their autistic kid/employee/husband (why is it ALWAYS husbands? Anyway...).

But there's nothing on interneurology friendships. Nothing. Nada. This is a deficiency I wish to rectify.

So if you're an autistic person who has good things to say about nonautistic friends, and things to say on the making and maintaining of those connections, and you want to, message me in some way. Or leave a comment and we'll get a conversation going. If you're a neurotypical/nonautistic person who has or had good connections with autistic people, same.

Thank yooooou!

YAY ACTIVISM AND STUFF.

I attend the walks for choice that started as a response to the right wing war on women. It's really really easy to be in support of free birth control, free STD testing,accessible abortion, and other reproductive health care in the liberal city I call home. We've never been counterdemonstrated (which would be hilarious, but I'm kind of strange..) and we've had exactly one invective yelled at us. People here are overwhelmingly in support of keeping Planned Parenthood funded, keeping abortion legal, making sure that the definition of rape doesn't get so stringent that most women aren't able to deal with the already stressful reporting process, basic stuff like that. They may not be willing to walk through town chanting about free testing for everyone, but they're all for it on the inside.

The thing is, though, that there are big intersectionality issues with anything feminist. Women are not all the same. There are women of all races, women of all sizes, cis women, trans women, rich women, poor women, neuroprivileged women, neurodivergent women, women with visible disabilities, women with no discernible disability.

That is a LOT of diversity to cover. And while I doubt we have it perfect, the organizers are doing their damnedest. And I approve. Many feminist kind of things, even those that try to be inclusive, engage in some kind of erasure, be it that of trans women, or of women of color, or mothers, or disabled women.

I'm sure there's a group no one thought of yet in our area because of the privilege that comes with not being in any given minority, but I don't know who that is, and that's kind of cool. I dread so much feminist activism because of the erasure, and I am not erased. I may be the only disabled person there (more likely I am not), but the existence of people like me, and the fact that people like me also need sexual health services, is acknowledged.

They even asked me to talk about the ableism that occurs in reproductive health services. That's kind of cool. So many people think that autistic people, disabled people, are asexual perpetual children, that my experiences being acknowledged by a mainstream feminist movement makes me warm and fuzzy inside.

Inclusiveness: because all of us matter. Go (my town's) walk for choice!

(yes I realize some people reading aren't pro choice. Some may even be anti contraception, which is a mindset that makes no sense to me for reasons I assume are obvious. I'd rather not have a bigass OMG BABYKILLER argument here, since the main idea of the post is YAY NOT BEING ERASED AND YAY EMBRACING DIVERSITY, not YAY ABORTIONS).

Information Retention & Processing

So something I've caught a lot of crap about lately is that I don't retain everything I perceive. I have a phenomenal memory (as many of us do), but if something is presented in a way that's not very good for me, I don't move all of it from short term to long term memory. That's just the way it is.


However, what the people taking this to mean I cannot learn are not understanding is that I perceive far more than they do. I probably don't catch everything, but not much goes unnoticed. As I sit here now I am aware of the smoothie being made 25 feet away (it has bananas and berries), I am aware of 5 different conversations about 5 different things, I feel and hear the lights, including the one about to die 10 feet to my right, the butt groove in the chair I am sitting in, the crookedness of the table directly in front of me, the grinding of the coffee across the big open space, the smell of the daily special (I think it has sausage). When I go to the hospital or doctor I can remember the names of the nurses because they wear name tags. I notice what hand people prefer.

In other words, remembering even half of what I take in would be remembering more than many people indicate noticing at all. If I remembered absolutely everything I'd have more conflicting information than I can deal with-that threshold is already awfully close. Discarding some of those conflicting details is how I have cognitive capacity to learn new things rather than spending all my time justifying 2 opposite ideas as compatible.

So yeah. I learn just fine, thank you.

Being Autistic Is...

In the style of What Epilepsy Is. Like that piece, this one is more about how other people react to autism than what autism itself causes. I'd think that'd be apparent, but one never knows.

Being autistic is being judged.
Being autistic is being yelled at for existing.
Being autistic is being subjected to verbal, physical and emotional abuse for existing.
Being autistic is being at high risk of being killed for existing.
Being autistic is knowing damn well that anyone who hurts or kills you will get away with it.
Being autistic is knowing that the person who hurts or kills you will be a folk hero.
Being autistic is being looked on as a tragedy.
Being autistic is teachers doing everything they can think of, legal and illegal, to make you not their problem.
Being autistic is people being scared of you.
Being autistic is people being scared of you when they haven't even met you.
Being autistic is being looked on as an emergency.
Being autistic is being told that your way of seeing the world is objectively wrong.
Being autistic is being told you have no empathy.
Being autistic is being told that by people who make no effort to see things your way.
Being autistic is being told that your very existence is a danger to you and to others.
Being autistic is being called a burden.
Being autistic is knowing you aren't going to get acceptable medical care.
Being autistic is being assumed incapable of having friends.
Being autistic is people talking to your friends instead of you.
Being autistic is people assuming you are incapable of understanding things.
Being autistic is people hoping you are incapable of understanding things so they can justify excluding you.
Being autistic is people excluding you anyway, because 'autism' is reason enough.
Being autistic is fearing for your job when people find out.
Being autistic is being erased-no one is like you in the media.
Being autistic is people disbelieving you are what you are because there are no autistic adults in the media.
Being autistic is having both your strengths and your weaknesses weaponized against you.
Being autistic is having to qualify everything you say as only applying to you.
Being autistic is doing exactly that, and still having people attack you for 'assuming you speak for [my] child."
Being autistic is doing exactly that and people still demanding you play universal translator.
Being autistic is those same people yelling at you when you tell them something they don't want to hear.
Being autistic is having very personal details of your life demanded of you.
Being autistic is being called 'tantrumming' when you don't answer said invasive questions.
Being autistic is giving 95-97% in every social interaction.
Being autistic is knowing that others resent giving even 3%.
Being autistic is every socialization problem being your fault, for you are the broken one.
Being autistic is knowing that the bullying you are subject to is socially sanctioned and celebrated.
Being autistic is knowing that your successes are resented.
Being autistic is charities that are supposed to help you trying to eliminate you.
Being autistic is being physically attacked at those charities' events for daring to show up.
Being autistic is being assumed to be the aggressor in those and any other situation.
Being autistic is having quack cures constantly shoved down your throat.
Being autistic is knowing that no one wants a child or friend like you.
Being autistic is knowing that if you point out how society treats you, people are going to challenge your anti cure status as disingenuous.
Being autistic is knowing that if you demand equal treatment, people will challenge your support needs.
Being autistic is knowing there is no way to win anything, ever.
Being autistic is fighting to be seen as an actual person.
Being autistic is knowing that fight will not be won in your lifetime.
Being autistic is fighting that fight anyway.

What to say, and not say, to an autistic adult

I borrowed this concept from Stark Raving Mad Mommy. I assumed she wouldn't mind too much. Hers is way funnier than mine.

DON'T SAY: "I never would have known. You must be very high functioning."

SAY: "I obviously don't know anything about autism."


DON'T SAY: "Are you sure?"

SAY: "I obviously really don't know anything about autism."


DON'T SAY: "Isn't that, you know, a kid thing?"

SAY: "Damn, the media works hard to erase you. That sucks."


DON'T SAY: "Don't you get that from vaccines?"

SAY: "I almost just asked you a preposterous question. Clearly, I suck."


DON'T SAY: "You aren't like my 5 year old nephew! You aren't autistic!"

SAY: "The media has so effectively erased you that it didn't occur to me that you grow up. I suck."


DON'T SAY: "You are nothing like my child! You aren't really autistic!"

SAY: "I am bitter and angry and it isn't your fault, so I'm going over there."


DON'T SAY: "Isn't neurodiversity, like, an exclusive club for Aspies and high functioning autistics?"

SAY: "I may misunderstand neurodiversity. Care to explain?"


DON'T SAY: "If you can 'advocate' so much, you aren't really autistic."

SAY: "I'm glad people are fighting the good fight so my kid may not have to."


DON'T SAY: "If my kid could do what you do, I'd consider her recovered."

SAY: "I wonder what my child will be like as an adult."


DON'T SAY: "That parent is just frustrated, they don't mean to be hateful. Have some empathy!"

SAY: "Wow, that was really rude of them. Are you ok?"


DON'T SAY: "They aren't ableist, they just don't understand! The unfamiliar scares people!"

SAY: "What an ableist turdbucket. Ew."


DON'T SAY: "If everyone treats you like that, you're used to it, right? Business as usual."

SAY: "People suck. I understand why you're often angry and frustrated."


DON'T SAY: "Why do you hate parents?"

SAY: "That shit irritates me too."


DON'T SAY: "But not all parents are like that!"

SAY: If you're doing it right, you shouldn't have to say anything. It should be apparent.


DON'T SAY: "Oh my god that must be soooooooooo haaaaaaaaaaard."

SAY: "I just noticed how loud and bright it is in here. Can I fix that?"


DON'T SAY: "Look at me. LOOK at ME."

SAY: "Based on what I just almost said, I have a deathwish."


DON'T SAY: "Doesn't eating a food and deliciousness free diet fix that?"

SAY: "Pizza, burgers, or burritos?"


DON'T SAY: "That sound/light/smell/random touching wasn't that bad. Just relax."

SAY: "There's a quiet dark place over there. Do you want company or want to be alone?"


DON'T SAY: "Aren't you worried about passing that on to kids?"

SAY: Don't say anything. My hypothetical future kids are none of your damn business.


DON'T SAY: "What was your first period/bra/sexual encounter/significant other drama/accidental innuendo/intentional innuendo like for you?"

SAY: Again, keep your mouth shut. This is even less of your damn business.


DON'T SAY: "Your parents did a really great job! You're so high functioning!"

SAY: "You are pretty fantastic."


DON'T SAY: "Autism is such a tragedy. Don't you hope they cure it soon so you can be normal?"

SAY: "Eliminating you would be a tragedy."

"What Would Meeting You Halfway Be?"

My friend asked me this after class with an "aware" teacher. And I was flabbergasted.

I have no answer to that question. I don't even have the shape of an answer, much less words, a description.

Meeting us halfway just isn't done. No one considers it as an option. It's a tidbit of ableism that is so entrenched that I never considered it; autistics do all the work is just how it is. We give 95%, everyone else complains about the 3% they grudgingly give & then they demand that we meet them halfway-because 97% is the new half.

It never occurred to me that they are fully capable of giving more. I don't know why, just that they don't. A communication problem must have at least 2 sides, yet "I have a communication disorder, so this is my problem" is the way it is. It's how it has always been. It's how things will continue to be for the forseeable future.

I still don't have an answer to my friend's query. I guess part of meeting me halfway would be ditching preconcieved notions that I can (or cannot) do something based on my skill-or lack thereof-in another area. Part is not assuming or using communication between the lines. Take stims as they are. Take me as I am-everything I do has a reason, but fretting about that odd thing I do isn't meeting me halfway; it is othering. Don't other me.

But really, I do not have an answer. I could not tell anyone how to meet me truly in the middle. I don't know what it feels like. If it's like my social experiences at conferences, it's both a freeing level of acceptance and something the NT majority will never achieve in my lifetime. It's not something they can or will do.

I don't know where halfway is, and I quite likely never will. There, I guess, is the answer.

More Consequences of Awareness

Kay.
So I'm taking a rock climbing class at the local community college. One of my good friends is taking it with me (for fun, and because, well, having a seizure at the top of a climb would be pretty horrendous if no one knew what was going on).

A few things to note right now:
a) I'm pretty much left handed for athletic purposes.
b) It takes me a few tries to reverse something to work for my left hand-ESPECIALLY if I look at it forward on or from anywhere but right next to the demonstrator.
c) I start displaying imminent frustration before I really notice it, especially when the lights are bad (they were).
d) On me, that looks like sideways hand flapping, gettingallthewordsoutatonce, being a bit more "don't touch me".

I get services from the disability office at school. I am not required to tell my instructors what I have, but it's not like it's a big secret, and I don't want autisticy stuff to be assumed to be seizure activity or vice versa, so everyone knows. No big deal. Or it shouldn't be.

But! My rock climbing teacher! He's *aware*! So we're doing our thing in class, learning to belay after we learn to make the knot. All the staff and instructor types are right handed. Apparently I'm the only left handed person they've ever met. So they tell me 15 different ways to do things, most of which amount to "be right handed".

I'm a bit frustrated with this, but fine. Whatever. I can climb like woah. I manage to not drop my friend for whom I am belaying-I was clipped into a ground anchor because of a significant size differential, but he did not, in fact, die. I also did not die while climbing. Well done, us.

Then this minty staff lady comes over and tells me to do the opposite of what the instructor told me. Oh...kay...

None of these people have The One True Truth of belaying, obviously. All the things I did did, in fact, work. But being told 3 different things in 5 minutes (again, most of which amount to "be right handed") is a bit much. I'm still clipped in to the ground anchor, ready to go, my hands flap a little.

"Unclip."

"uh, what"

"Unclip. There seems to be negative energy and emotions.:

"...what"

Blah blah unsafe blah blah not concentrating blah blah frustrated.

"Well, you told me one thing and she told me another and it's what I was doing so I'm processing".

"Unclip & we can have a discussion"

"...I want a cognitive interpreter..."

Seriously, I had no idea what I did. None. The first thing that came up in the 'discussion' is that as an autistic person I just operate a bit differently, and oh man did the condescension turn on.

No, I do not need little words. No, I am not going to hurt you (WHAT is it with instructors asking me that this week? I'm 120 pounds. I am about as intimidating as a rabbit). My friend, who actually knows me, trusts me to not drop him. Please, keep your distance. Please, stop acting like having me here is a big fucking hassle. "are you sure you can...do this?" Why yes, yes I am. Crazy, but I'm in pretty good shape.

I do, in fact, learn even! I'm good with the distance keeping, honestly. I'm not so good with you talking to my friend (who was cognitive interpreting) like I'm a recalcitrant child, like I cannot hear you. I am not ok with the ableist language to my classmates and the assumption I wouldn't get it. Yeah, 'people like me' do in fact have recreational activities.

Oh, people like me are even adults! I don't care how well meaning your statements are, when they're talking points out of PSAs about children, I hate you. No, I won't fucking take a 'time out'. I will go get food. I will go for a walk. Anyone who thinks 'time out' is acceptable language to use with a grown woman is too far out of realityland for me to listen to, ever, but yes, I do in fact remove myself from situations.

Oh. The catalyst for his freak out? Flapping is BAD. No. Seriously. I thought he was saying it to cover for something even more ridiculous, friend said he was dead serious. Awareness tells him so!

Thanks, 'awareness'! I need to have my coping mechanisms demonized! It makes my whole damn day! I need to be treated like a kindergartener by a community college PE teacher! That made my whole week! And, shit! Having half my teachers afraid of me, THAT makes my whole year! Because we all know that all autistic people are Manchurian Candidates or something, just WAITING to completely lose their shit and destroy everything in our paths!

Except we aren't. If this is 'awareness', ignorance really is bliss.

Be aware of THIS

This was my 2008 Autism Awareness Month post.

Ah April, the true cruelest month, at least if you are autistic or sympathetic towards autistics and what we really think. "Autism Awareness Month", they call it. Awareness of what? It seems more and more to be awareness that many parents feel cheated because they didn't get the typical or supertypical child they feel they so richly deserved, a month of awareness of how the PARENTS feel they suffer, a month of awareness of all the things they are putting the child through to put themselves out of their misery. Quackery awareness month, even, but of course no one will come out and call a spade an effing shovel because autistic people don't count in this society. That's right, it's a f*ing shovel.

With that in mind in this vomitous puzzle piece bedecked month, here are some things to keep in mind if you intend to "do something for awareness" or are bombarded by people who are (or are asking you why you aren't):

1. "Awareness" is not the same thing as information. I can get 10,000 people to wear a puzzle ribbon pretty easily but that doesn't mean they know a blessed thing about autism. "Awareness" is crap.

2. "Awareness" is a vague goal, in addition to being crap. Awareness of what? Awareness of what autism IS? No, no one exactly knows and that's too much like information. Awareness that adults need services too? No, we don't look cute on their posters. Awareness that autism is more than just people smearing shit and banging their heads? No, that makes us sound too much like people. Awareness that many parents think that ohnoesvaxxeenzeetbabeez and they need to follow their GooglePhD protocol to rescue them and need YOUR MONEY to do it? That particular faction shouts the loudest. Note how few autistic people are served by "awareness".

3. Please be AWARE that autistic people are just that, PEOPLE. We don't need the dehumanization that nearly invariably comes with the "human interest" stories. Even if we don't talk, we can hear and pick up on the attitude that exudes from these pieces.

4. Please also be AWARE that we are AWARE of autism year round, and thus don't necessarily feel the need to do more than we do every day-namely, being ourselves. Conversely, if other people happen to notice us being ourselves more during April, that isn't necessarily us "acting out", but so called awareness making people more aware or self conscious or whatever. The rest of the world can suck it up and deal.

5. Consider that we may not want to read every article on autism, go to every (or even ANY) autism event, or watch every program. See dehumanizing, above. This holds especially true for anti cure folks and those of us who have more than had our fill of the dehumanizing vomitous pity party garbage.

6. Be AWARE of not just the "valiant struggling parents", but also the children and adults who are doing well, the ones who aren't doing well, and the ones who are doing what THEY consider well and are happy.

7. Be especially AWARE of the autistics who's parents, caregivers, and others bought into their own self pity and have done terrible, often irreversible things to them. NEVER EVER forget those who are no longer with us, for the crime of being autistic.

I really hate Autism Awareness Month. For my part, I will be being myself and perhaps breaking out a couple of my more pointed neurodiversity shirts. That's about it. I don't do big bursts of awareness.

Alternative Autism Awareness

This is a repost from April 2006. It's one of the first blog posts I ever wrote ever.

Autism Awareness Month?

Or is it "Fundraise for cash to get rid of autistics month"? Anyone who isn't AWARE by now lives under a rock. So. What do we do about it?

I propose an alternative way of celebrating. Forget the fundraisers. NAAR, CAN, DAN!, MOMA, AutismWeeps, all those organizations can piss off. Let's make people REALLY aware of autism.

When April rolls around, I make a point of stimming in public. A LOT. Not hiding the lack of eye contact. Wearing shirts that I made myself and the one I have from ANI that have autism-positive wording. I've been known to make people "talk" to me in writing. Sensory simulations for NTs, done well, will make them aware all right, but it's important to emphasize that it's the world's turn to change, not ours. We've adapted to their world since the beginning.

If I could get the gig, I'd talk to school kids about autism and how it isn't bad, just different. Get them while they're young. Teaching autistics about their unique brains is another one I want to do on a larger scale. We need more "unique", "talented", "what a great kid!" and less "emergency," "epidemic," "tsunami" language.

The most important thing isn't getting rid of the ghastly puzzle ribbon (though I sure wish we could!). It is making people aware of what we are good at, as a group and individually, instead of just where our weak spots are. Educating people that being autistic is OK. Even being nonverbal is OK (alternative communication anyone?). Teaching them that cure isn't the answer, but instead meeting us halfway. Teaching them that abuse isn't necessary to for us to learn skills.

We don't need Autism Awareness Month. We need Autism EDUCATION Month. Educating educators, parents, other professionals, random kids and adults in public, and educating OURSELVES. This is what we should be doing. If only the big organizations could see it...

Loving Lamposts

"He knows he used to have autism and that makes him sad."

This statement in the documentary Loving Lampposts has been haunting me. It is among the most tragic sentiments I've ever heard. My heart aches for that child-not because he 'had' autism, but because who he is is seen as shameful. His brother was described as "having some of the same thought processes as autistic children...but if anything, he's gifted."

And attitudes like that, attitudes that autism is a horrorshow and we're all doomed to utter incompetence, is why Loving Lammposts gets happy flappies from me.

Why?

This documentary leaps in where angels fear to tread: Todd Drezner interviewed people on all fronts of the autism wars. He talked to Jenny McCarthy. He talked to people selling quack treatments. He talked to cure-oriented parents buying those treatments. He talked to true believers in the vaccine hypothesis. He talked to scientists, experts, and 'experts.' He talked to acceptance-focused parents. And he talked to autistics.

Representing all factions in the often heated discussion about autism is no easy task. How can it be, when one group is convinced another is malignantly misguided, and another is convinced that their opposition wants their kids to fester, and more people are convinced an autistic isn't an autistic if they have an opinion on autism? It's hard enough to wrap your head around the idea-now try presenting all viewpoints in a respectful manner in a fairly short documentary. Yeah, like that's possible.

Except apparently it is, because Loving Lampposts is exactly that. Everyone has their say. Even we have our say, which doesn't happen in the autism world much.

Through interviews, Drezner put human faces to all the views on autism. That's something that gets lost in the heat around autism-that everyone involved is a human. The parents who are frantic to fix their 'broken' kid are human. Those kids? Also human. The parents who are striving not to fix but understand? So human that I wanted to reach out and give some hugs. And their children? And the autistic adults? Three dimensional really real people.

I've been anticipating this documentary since I met the production crew at AutCom in 2007. It was worth the wait-I've been recommending it to everyone who wants to know about the autistic community, the autism communities, and their relationships to each other.

Loving Lampposts is a slice of getting it that exceeded my expectations. A++, would watch again (and again...and again...and again).

Thoughts for Budding Advocates

I've been around advocacy for a while-long enough that I'm baffled that people don't know what neurodiversity is & can't believe that people don't know why r*tarded is offensive, but not so long that I really expect to be 'known'. I've been called a firecracker, a force of nature, & the irresistible force meeting an immovable object-those are my qualifications to write on the matter.

This is directed at those of you who are just finding a passion & something worth speaking out about.

Know that it isn't always easy. Know that it gets harder before it gets easier, & that's not necessarily change, but you getting used to the work.

Know that people tend to hold to their prejudices. They may not take kindly to their behavior being called out. It's up to you whether or not that's a part of the battle you wish to take on-I do, but I'm not going to think less of you if it's not something you're taking on at this time. Do what you can do, y'know?

Know that as you get involved in causes-particularly social justice sorts of causes-you'll pick up on more things as unjust. You can try to save the world, but you'll burn out. We all do what we can, right?

Don't be afraid to get angry. Effective activism and polite activism are mutually exclusive. Harness your anger for what you are trying to accomplish. It's ok to offend people sometimes--they can't be offended if they aren't listening.

If you need to take a break, do it. This isn't always an easy thing, activism. That's why it's best to do what you really mean, what you really believe in.

Other people are fighting your fight too. They're your allies. They may not be your friends, but they are on your side.

Good luck changing the world, even a little.

What epilepsy is.

Epilepsy isn't just seizures.

Epilepsy is always having to be vigilant.
Epilepsy is knowing every escape route in case of a seizure.
Epilepsy is having to carry a first aid card, an ICE sheet, and wear a medicalert.
Epilepsy is doing all that, knowing all too well that no one actually looks.
Epilepsy is hoping people don't run away the first time you have a seizure.
Epilepsy is always being told that 'there are meds for that'.
Epilepsy is always having to be aware of potential flashing lights.
Epilepsy is having to choose between leaving a place & risking the lights.
Epilepsy is teaching other people how to turn off their red eye reduction flashes.
Epilepsy is having to explain why that matters.
Epilepsy is people telling you that your safety is less important than their picture.
Epilepsy is being yelled at for advocating for yourself.
Epilepsy is being yelled at for not advocating firmly enough.
Epilepsy is being yelled at for not being able to be diplomatic about how someone is hurting you NOW.
Epilepsy is being told you don't have a real disability.
Epilepsy is often being disabled by the very people who tell you that.
Epilepsy is spending days making arrangements so an event is accessable.
Epilepsy is having those agreements be broken, ruining your weekend.
Epilepsy is being expected to thank people for almost making an agreement.
Epilepsy is being yelled at for saying “you could have done better”.
Epilepsy is being expected to be nice about them trying, even if you just had a seizure that they caused.
Epilepsy is people telling you to stay in your house if others cause dangers.
Epilepsy is people thinking you are being too cautious by avoiding people known to be ableist.
Epilepsy is not knowing how many flashes will be a problem, but that whether 2 or 20, it's coming.
Epilepsy is having to educate people unwilling to learn, and doing so while you are at your worst.
Epilepsy is not being believed about your needs until you are in a drastic situation no one was willing to be ready for.
Epilepsy is being expected to be grateful when people almost treat you as a real person.
Epilepsy is knowing they don't think you are a real person.
Epilepsy is always hearing “you are an extreme minority so you don't matter”.
Epilepsy is hearing that from another minority who should get it.
Epilepsy is being unable to win, ever, because the rules keep changing, and giving up is losing too.

To the Newly Diagnosed (Especially Teens & Adults)

So you just found out you're autistic. You've been living your life wondering why you have such a hard time with things other people find effortless, why you notice things others do not, why you feel out of step with most of your peers.

And you hear the answer is autism. And the mix of emotions that goes with it is confusing-relief, fear, denial, acceptance, a thousand things.

Welcome, and Congratulations.

Welcome to a community that takes care of its own. Welcome to a community of people who get it. Welcome to a community where being unusual is acceptable, where we know that your difficulties in 'easy' tasks are not a moral failing, where we know that your strengths don't negate those difficulties. We have drama and personality conflicts, as do all communities, but we also have a lot to offer each other.

Congratulations on getting an answer. Congratulations on being an individual. Congratulations on being you-you're probably pretty fantastic.

Some advice, whether you want it or not:

-Be yourself. To hell with anyone who thinks that who you are isn't ok. At the end of the day, you are the one who has to live with you. Trying to put up a normal facade day after day is unsustainable.

-Take care of yourself. It's ok to excuse yourself from situations that are overwhelming or painfully difficult. It's you who has to live in your skin and your brain, not anyone who tries to give you crap for it.

-Don't let anyone make you think you are broken. You aren't. Different, yes, but faulty? Nope. Having difficulties isn't the same as being fundamentally broken.

-As a corollary, don't go chasing every so-called cure that comes out. They are usually scientifically bassackwards, usually expensive, and often harmful to your vital organs.

-DO get any therapy that may be helpful. Anxiety is crappy. Sensory issues are crappy. Insomnia is crappy.

-If you have health issues, take care of them, but don't expect that to cure your autism. It won't, but it's a lot easier to function in this alien world if you aren't also sick.

-Seek out our kind. There's nothing like being in a place where everyone speaks the same dialect. It's beautiful. You need to experience the ease of relating to people who grok.

-Non autistic people sometimes get it, too. They're good people to get to know.

-Accept yourself as you are. Strive to be the best you that you can be. Always.

With open arms,

Neurodivergent K.