This is what I emailed my senator earlier today, because only the senate can keep the ACA. CN for medical disasters, fairly graphic descriptions.
You get the cranky version of this because your staff won't even
promise the most basic of ADA accommodations. Ironic given that I'm
writing to you about health care and one of the conditions that requires
Like many Americans, I have chronic health
conditions. Like many Americans, I need you and the whole democratic
party to grow a spine and stand for me. I vote democrat because the
other choices are unconscionable, but I am thoroughly unimpressed with
the pattern of roll over and play dead. I need you to not be a doormat.
Here's some incentive: how I am going to die if the senate doesn't kill the republican death to poors bill.
My first chronic, life threatening medical condition is adrenal
insufficiency. I do not make cortisol. Without cortisol, people's bodies
cannot respond to the stresses of every day life. I take a daily
corticosteroid pill and must inject myself with extra steroids if I am
sick or injured. Without cortisol, the body cannot restore normal
functions in times of stress. Have you taken a first aid class, Senator?
Recall what you were told about shock. The heart doesn't pump
effectively. Blood pressure crashes. Blood sugar crashes. Death can
result. I am going to die from going into shock from a stubbed toe if
you folks don't find some courage. It's scary. When your heart won't
move blood, everything is /scary/. It's not a good death.
other option, of course, is for me to die of epilepsy related
complications. Because of a lack of health care in my youth, my epilepsy
got pretty hard to treat--the more seizures you have, the more likely
you are to have more seizures. They are harder to treat the longer they
are allowed to go on--this is called kindling. As a result, my
mostly-effective seizure meds are about $1000/month (if we lived in a
real country with universal health care they'd have been stopped much
sooner, but we don't. We live in the land of "the poor and disabled
should die horribly". Your part in maintaining that status quo is very
I have 2 options for how to die if epilepsy related
causes take me. The first is SUDEP, sudden unexpected death in epilepsy.
The way to prevent SUDEP is to control seizures. SUDEP is probably not
painful, but it's traumatic to the people who find the body, and it's a
dead person who won't vote for you. Dead people don't vote. It's a lot
of grieving people, all because the D doesn't stand for democrat, but
The other option is status epilepticus. You aren't going
to like reading this. Since it's my fate, not yours, I don't actually
care. Be brave. It'll be good practice for that spine growing thing.
Status epilepticus is a seizure that does not stop.The most commonly
noticed status epilepticus is tonic clonic status, although partial
complex and absense status also exist (and lead to all sorts of problems
like subtle brain damage and getting hit by a goddamn car because
you're only 25% aware of the world around you). This is not good.
Your body is not made for every muscle to be contracting at once for an
extended period of time. Neither is mine. The muscles start to break
down. This floods the body with waste. The brain fries itself. Like,
literally. It cannot deal with the fallout of the electrical activity.
It is not made for that. You can seize yourself into a persistent
vegetative state. If you are me, your seizures will dislocate joints.
Remember that adrenal insufficiency thing earlier? That is the sort of
injury that leads to adrenal crisis, as is everything else about status
epilepticus. Your heart gives out. Your kidneys can't cope. Your brain
stops being able to not seize.
This is an awful way to die.
If you do not stand up to Republicans, you are choosing for me to die this way. And my loved ones will not forget it.
With health care, I am an involved member of my community. I
participate in martial arts and assist children in accessing the
activity as well (including children who, like me, need health care to
be able to interact meaningfully with all that life has to offer). I am
finishing a biology degree--I was going to be an ecologist until the
republicans decided to destroy ecology, and no one stood up and said
"nah bro you can't do that". I teach and judge gymnastics. Kids and cats
love me. It's mutual.
Without health care I'm a corpse. And my blood will be on your hands.