"He knows he used to have autism and that makes him sad."
This statement in the documentary Loving Lampposts has been haunting me. It is among the most tragic sentiments I've ever heard. My heart aches for that child-not because he 'had' autism, but because who he is is seen as shameful. His brother was described as "having some of the same thought processes as autistic children...but if anything, he's gifted."
And attitudes like that, attitudes that autism is a horrorshow and we're all doomed to utter incompetence, is why Loving Lammposts gets happy flappies from me.
Why?
This documentary leaps in where angels fear to tread: Todd Drezner interviewed people on all fronts of the autism wars. He talked to Jenny McCarthy. He talked to people selling quack treatments. He talked to cure-oriented parents buying those treatments. He talked to true believers in the vaccine hypothesis. He talked to scientists, experts, and 'experts.' He talked to acceptance-focused parents. And he talked to autistics.
Representing all factions in the often heated discussion about autism is no easy task. How can it be, when one group is convinced another is malignantly misguided, and another is convinced that their opposition wants their kids to fester, and more people are convinced an autistic isn't an autistic if they have an opinion on autism? It's hard enough to wrap your head around the idea-now try presenting all viewpoints in a respectful manner in a fairly short documentary. Yeah, like that's possible.
Except apparently it is, because Loving Lampposts is exactly that. Everyone has their say. Even we have our say, which doesn't happen in the autism world much.
Through interviews, Drezner put human faces to all the views on autism. That's something that gets lost in the heat around autism-that everyone involved is a human. The parents who are frantic to fix their 'broken' kid are human. Those kids? Also human. The parents who are striving not to fix but understand? So human that I wanted to reach out and give some hugs. And their children? And the autistic adults? Three dimensional really real people.
I've been anticipating this documentary since I met the production crew at AutCom in 2007. It was worth the wait-I've been recommending it to everyone who wants to know about the autistic community, the autism communities, and their relationships to each other.
Loving Lampposts is a slice of getting it that exceeded my expectations. A++, would watch again (and again...and again...and again).
When the mob and the press and the whole world tell you to move, your job is to plant yourself like a tree beside the river of truth, and tell the whole world
"No, you move."
Showing posts with label newly diagnosed. Show all posts
Showing posts with label newly diagnosed. Show all posts
Saturday, April 2, 2011
Tuesday, February 22, 2011
To the Newly Diagnosed (Especially Teens & Adults)
So you just found out you're autistic. You've been living your life wondering why you have such a hard time with things other people find effortless, why you notice things others do not, why you feel out of step with most of your peers.
And you hear the answer is autism. And the mix of emotions that goes with it is confusing-relief, fear, denial, acceptance, a thousand things.
Welcome, and Congratulations.
Welcome to a community that takes care of its own. Welcome to a community of people who get it. Welcome to a community where being unusual is acceptable, where we know that your difficulties in 'easy' tasks are not a moral failing, where we know that your strengths don't negate those difficulties. We have drama and personality conflicts, as do all communities, but we also have a lot to offer each other.
Congratulations on getting an answer. Congratulations on being an individual. Congratulations on being you-you're probably pretty fantastic.
Some advice, whether you want it or not:
-Be yourself. To hell with anyone who thinks that who you are isn't ok. At the end of the day, you are the one who has to live with you. Trying to put up a normal facade day after day is unsustainable.
-Take care of yourself. It's ok to excuse yourself from situations that are overwhelming or painfully difficult. It's you who has to live in your skin and your brain, not anyone who tries to give you crap for it.
-Don't let anyone make you think you are broken. You aren't. Different, yes, but faulty? Nope. Having difficulties isn't the same as being fundamentally broken.
-As a corollary, don't go chasing every so-called cure that comes out. They are usually scientifically bassackwards, usually expensive, and often harmful to your vital organs.
-DO get any therapy that may be helpful. Anxiety is crappy. Sensory issues are crappy. Insomnia is crappy.
-If you have health issues, take care of them, but don't expect that to cure your autism. It won't, but it's a lot easier to function in this alien world if you aren't also sick.
-Seek out our kind. There's nothing like being in a place where everyone speaks the same dialect. It's beautiful. You need to experience the ease of relating to people who grok.
-Non autistic people sometimes get it, too. They're good people to get to know.
-Accept yourself as you are. Strive to be the best you that you can be. Always.
With open arms,
Neurodivergent K.
And you hear the answer is autism. And the mix of emotions that goes with it is confusing-relief, fear, denial, acceptance, a thousand things.
Welcome, and Congratulations.
Welcome to a community that takes care of its own. Welcome to a community of people who get it. Welcome to a community where being unusual is acceptable, where we know that your difficulties in 'easy' tasks are not a moral failing, where we know that your strengths don't negate those difficulties. We have drama and personality conflicts, as do all communities, but we also have a lot to offer each other.
Congratulations on getting an answer. Congratulations on being an individual. Congratulations on being you-you're probably pretty fantastic.
Some advice, whether you want it or not:
-Be yourself. To hell with anyone who thinks that who you are isn't ok. At the end of the day, you are the one who has to live with you. Trying to put up a normal facade day after day is unsustainable.
-Take care of yourself. It's ok to excuse yourself from situations that are overwhelming or painfully difficult. It's you who has to live in your skin and your brain, not anyone who tries to give you crap for it.
-Don't let anyone make you think you are broken. You aren't. Different, yes, but faulty? Nope. Having difficulties isn't the same as being fundamentally broken.
-As a corollary, don't go chasing every so-called cure that comes out. They are usually scientifically bassackwards, usually expensive, and often harmful to your vital organs.
-DO get any therapy that may be helpful. Anxiety is crappy. Sensory issues are crappy. Insomnia is crappy.
-If you have health issues, take care of them, but don't expect that to cure your autism. It won't, but it's a lot easier to function in this alien world if you aren't also sick.
-Seek out our kind. There's nothing like being in a place where everyone speaks the same dialect. It's beautiful. You need to experience the ease of relating to people who grok.
-Non autistic people sometimes get it, too. They're good people to get to know.
-Accept yourself as you are. Strive to be the best you that you can be. Always.
With open arms,
Neurodivergent K.
Subscribe to:
Posts (Atom)