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For those of you playing along at home,
Orycon told Dora that they would be cancelling the no Autistics
involved autism panel.
What happened instead? According to
someone who was actually there, the following events:
-The door of the panel still references
autism. The people who elected to go against con staff instructions
(if I am being charitable) or who were asked by con staff to ignore
the cancellation (if I am not) are Joyce Ward-Reynolds, her son (who
she offered up as a token), and G David Nordley.
-A friend of mine walks in wearing a
neurodiversity shirt. Joyce-Ward Reynolds starts squirming &
looking very uncomfortable and apologizes for using person first
language. A note here: this is kind of like totalling someone's car & apologizing for scratching the paint.
-When asked why the panel was
cancelled, Ms. Ward-Reynolds said it was “because there were some
in the autistic community who were concerned about the panel not
having any autistic people on it and when I offered to bring my son
they said that wasn't good enough.”
-When my friend's NT friend went to
registration to complain that the schedule still said “Autism
Spectrum”, registration said it was a mistake. Not “Oh, they
shouldn't be there”, but “it's a mistake, now I'mma go back to
picking my fingernails”.
-Halfway through the hour, some guy
(friend did not see who) opened the door, looked in, and said “Oh
right, this room does not exist.” Ms. Ward-Reynolds laughed and
said “Yeah, this panel never happened.”
-Therefore, official bullshit is that
the panel was cancelled & this woman was using a vacant room to
have an informal discussion, becoming the first person in the history
of ever to use space rented by a con to do something she was
explicitly told not to do by the con without the con noticing.
Now, I have been involved with
organizing con like things before. And I am telling you one thing,
nothing happens that con staff doesn't know about. And I am telling
you another thing: if there is something that got cancelled because
of controversy, con staff is especially watching the participants in
that-if they care, of course.
If your goal is to do whatever you were
going to do anyway, you happen to not notice that someone is in the
space you paid for, doing what you said you wouldn't do. If your goal
is to actually respect the people who raised the issue, you make DAMN
sure that the cancelled event stays cancelled.
The dishonesty shown from Orycon is
really disgusting. We made overtures, we made efforts, and contrary
to what people who are used to having their asses kissed believe, we
were all polite. Every one of us. Orycon didn't dislike our
“tone”-there was nothing there to object to. They disliked being
called on their oppressive bullshit.
Orycon told Dora that they learned, that they appreciated being told where they went wrong, that they wanted to make it right. Taking advantage of people wanting to work with you is not making it right. It will get back to us. We see your bullshit and raise you a “you did bad things and should feel bad”, Orycon. It is bad enough to go right ahead and do exactly what you are going to do anyway, but to lie about it? No. That multiplies the offensiveness exponentially-it WILL get back to us, and we WILL be pissed off.
Orycon staff & panelists have been
disrespectful, dismissive, & dowright ableist from beginning to
end. It's good to know that a couple of neurotypicals feel that their
wish to share what they learned on Teh Googles is more important than
what actually autistic people think about it, and it's fantastic to
know that Orycon gives no shits.
The people who had the power to stop
this did not.
So, let's recap the steps Orycon took
in fucking up spectacularly (sorry, I'm sorry moderating my language
and tone for y'all, it clearly does nothing good):
First, they scheduled this panel in the
first place, clearly with little to no research on the subject in the
first place.
Secondly, they condesplained at me when I inquired, and indicated that it was totes cool because you don't have to be gay to be for gay rights (they had no answer as to whether or not a panel of straight people talking about the apparent increase in homosexuality would be even a little acceptable-spoiler alert, y'all, it'd be fucking terrible don't do that).
Thirdly, when they met with another
Autistic activist they told her they were completely ignorant &
would be putting up an apology & cancelling the panel. That's not
actually the bad part. The bad part is that they, here, were lying.
Fourthly, the apology they put up is a
sack of crap. It is not an apology. They were told that the first
thing they needed to do in their apology was acknowledge that they
fucked up. If they have done this, I have yet to see it, but it sure
as shit isn't in their nonpology-which is nothing but excusing
themselves & pleading ignorance as though that's a get out of
jail free card.
Fifthly, they still held the panel. If
people are joking about the room not existing, it is damn well staff
sanctioned, even if not officially. When Orycon allowed it to
happen-and they knew, not only that, but my friend's NT friend's
inquiry should have been a pretty big hint to check on it if they
were serious about cancelling it-they spat in all of our faces. This
is basic stuff here, guys.
If Orycon is serious about wanting to
work with autistics, they're going to need to do a hell of a lot
better than this. Apparently the chair is telling other people
they're oh so sorry, that they feel like a failure of a human being,
that they didn't know, that they didn't mean for this to happen, but
I don't believe them.
If they were actually sorry but
ignorant, they'd be doing some serious naming & shaming, because
this isn't acceptable behavior, no matter how oh-so-important the NT
panelists fancy themselves. IF they were actually sorry but ignorant,
there should be a much longer, much better apology up on the website.
If they are actually sorry at all, they owe an awful lot of people
personal apologies in addition to owing the Autistic community some
pretty significant groveling.
Joyce Ward-Reynolds, I don't know what
makes you think you are above honoring promises made by a con that is
paying you, but nothing does. You directly contributed to a world
that devalues your son-not for being a furry, but for being autistic.
Good job. Are you proud of yourself? I know, all that googling and
maybe even reading a book was oh so hard, and you are oh so
important, you couldn't possibly listen to someone who wasn't you,
because you are an expert.
And no, throwing your son on the panel wasn't good enough, because this isn't his thing. He's a member of the furry fandom, good for him. He is not an autistic activist. This is not an area that he wants to talk about. Offering him up as a token was disrespectful to every autistic person who actually had things to say on the subject-and many of us have well researched opinions on the subject, by which I mean “we read scientific papers and we made comments on the DSMV criteria”. It was disrespectful to him as well. You may have him convinced that I'm a meaniepants, but at least I have enough respect for him to know that using him as a get-out-of-trouble shield is disgusting & dehumanizing. So I'll take being a meaniepants every time.
G David Nordley, what makes YOU so damn
important that you don't have to honor the people you are talking
about or the convention's promise? Seriously, I want to know.
This is the panel that is oh so autism sophisticated (their words) that they don't see it necessary to talk to autistic people. These are the folks who are so hell-bent on having their say they will put their reputation and that of Orycon on the line, damn what the people they're talking about have to say about it. That's how important they are (and people say autistics are self centered!). I'm reminded of a line from one of the parents in the ableist emails-something about how their son would be a shitty panelist unless you wanted to hear him talk about what he wants to talk about. Who went and did exactly that-talked about whatever they wanted to talk about without regards for other people? Oh it was these non autistic panelist. 'Scuse me, my irony meter exploded.
I'm waiting to see how you'll unfuck
this up, Orycon. I know that this year's chair is telling other
people that they feel like a failure of a human being, but is failing
spectacularly to act towards being less of a failure-generally
stopping failing is a good way to get past that feeling. I also know
they're saying that nothing could be worse than what's going around
on Tumblr (challenge accepted, btw). Things do get back to me.
Orycon has a lot of fixing to do before
I will consider giving them my money, I will not be attending any
cons where either Ms Ward-Reynolds or Mr Nordley are speaking, and I
have a pretty steady crew of friends who are right on board this plan
with me.
If it was your plan to deceive us all along, it is high time you put on your big kid undies and admitted it. If it really was panelists casting Forget on you & going rogue, convince me.
In other words, they were about as good at apologizing as Tony Attwood was when he was caught mimicking Autitics for a laugh. Not exactly news, and consistent with my experience of many professionals and also of Fandom.
ReplyDeleteYeah. Someone came on my blog saying how I "just wanted to attack Orycon" because they talk about things not related to sci-fi ALL THE TIME. I removed the comment, of course. Replied to the "content removed" place holder with a "nice try, but that's not what's actually wrong."
ReplyDeleteI worked in customer service, kind of forced in to it at work, for survival, for a couple of decades. In professional organizations, one would have received the standard apology first, and attention to concerns along with that apology.
ReplyDeleteThis volunteer effort for the convention is obviously not professionally run, and instead run by a person on the spectrum, in this case, so you got random volunteer responses first, and professional apologies and concerns last; a simplistic analogy but kind of like running a lemonade stand, when the parents come in after a customer dispute.
That's not that surprising, and a significant reason that charitable organizations cannot run without the customer service/marketing specialist minds. Not always a strong point on the spectrum. Sometimes what you see is what you get. It took me a while to learn to adapt, but I was getting paid for what I did.
Real professional public relations, even organizations at the level of the cashier at McDonalds, cannot afford to have anyone that says what is actually on their mind.
It is only the expressed respect of perspectives of others and providing at least lip service, with a smile, for some kind of positive solution that is allowed if one wants to stay employed. The same rules don't always apply to volunteer efforts, particularly when some people on the spectrum are part of those volunteer efforts.
Your story illustrates that well, but it wouldn't likely matter which side of the customer service counter one was on, the results would likely be similar, either at McDonalds or at a Sci-Fi Convention.
What I'm trying to say here, in a tactful way, all these things considered, is, that at this point, your response might be a little harsh on these folks running the convention that were either on the spectrum or close to it. It is a social communication disorder, after all. And that appears to be what the apology attempted to relay in a polite way, that they did not fully understand your communication. It was a bit unusual, the hearing with trepedation(sic)/ y'all part, as far as whether you were being serious or condescending, per less than pedantic communication, considering the likely "geek" folks you were communicating with.
And, as far as still having an informal conversation on the topic in another room in the convention, one does not always easily take away a special interest of a group of people, even close to the spectrum, without a fight, as they don't always play by the rules of others, easily, particularly when there are no real consequences of adhering to the rules of distant others.
The likely concern here was to end the conversation in a positive way on the internet per recorded history, as it is highly unlikely that anyone's special interest to attend the next conference will be significantly influenced by this incident, punctuated by this ending of record on the internet, by the time the convention rolls around again.
The whole environment of the Sci-Fi special interest arena, does provide a bit of extra cushioning for any real impact of not sticking strictly to customer service science.
Not likely they usually encounter a comment of the style of communication you used in your first email, at a Sci-Fi Con in Portland. The series of back and forth conversation appeared to be illustrative of this.
Hope this doesn't sound condescending to you, as I don't intend it that way, but this is the way I describe things, that I cannot easily alter, and what you see is what you get. Notice though, after 20 years of customer service I have no problem not saying outwardly offensive things to people. I don't expect you or anyone else to reciprocate that, but always appreciate it when it happens.:).
It isn't just a bunch of socially-inept Trekkies pulling this type of nonsense. Congress is having some kind of hearing on 12/29/2012, and they're talking about us without us.
ReplyDeletehttp://www.thinkingautismguide.com/2012/11/speak-out-congressional-autism-hearing.html
Unlike the Orycon panel, which was limited in its scope to misinform, Congress actually votes on legislation and budget items that affect autistics across the United States.