November is epilepsy awareness month.
I'm not so big on awarenessitis, but seeing as no one I know really knows squat about seizures, I'm going to try a few things.
For some background, I've got partial complex, absence, and occasionally generalized motor seizures. Primarily the partials live in my right temporal lobe, & they're classified as medically refractory.
I've been on a number of medications, I'm not a candidate for cortical resection, and VNS is something that I'd like to explore, maybe, but I'm actually pretty happy with what I take now.
So, what I am doing for Epilepsy Month is:
a) Posting something at least vaguely related every day. It may be something I wrote after having a bad day or misunderstandings, it may be 101 info, it may be a "ha ha, listen to this ridiculous thing I did postictally! Epilepsy is serious, but I don't have to be" kind of thing.
b) Tweeting at least one fact-thing a day (I have way more non neurodiversity type followers than readers).
and
c) making 101-110 level fliers and handing them out. Everywhere. ESPECIALLY places where I interact with people.
But I need your, yes your, help! I'm at the point where I don't remember what's 101 info and what's eyeballs-glazing-over technical. Or what questions people have. So leave 'em in the comments! Please? Otherwise I'm going to end up with a month of BAAAAAAAAAAAAAAAWWWWWWWWWW PEOPLE ARE WEIRD ABOUT EPILEPSY! posts and really awful fliers. That'd be tragic, right?
1) What are some physical indicators that someone (you?) is about to have (or is having) a seizure?
ReplyDelete2) What are some things someone can do to help a person who is having a seizure?
I've only seen someone have a seizure once (it was while I was at work a few years ago), and the only reason I didn't call 911 was because the person knew it was coming and said, "DO NOT CALL 911." But I didn't know what to do and no one else did either.